Children and sickle cell anemia, central sports therapy and rehabilitation

Rome, June 22 (Adnkronos Salute) – A child with sickle cell anemia “should have a full and complete life, beyond the disease and out of the hospital, as much as possible as other children : he must be able to attend school, play, play sports “. Thus, Paola Corti, pediatric haematologist, head of the Red Blood Clinic of the Monza i Brianza Foundation for children and their mothers at the Maria Letizia Verga Center of the San Gerardo de Monza Hospital, in ‘Aleati per la Salute’ (www alleatiperlasalute). .it), the portal dedicated to medical-scientific information created by Novartis.

Monza Hospital offers a rehabilitation service and a ‘sports therapy’ service and is a benchmark of excellence for patients with sickle cell disease, a rare, chronic and complex disease. The cause is a genetic defect that causes the presence of an abnormal hemoglobin, hemoglobin S (sickle cell hemoglobin) which causes red blood cells to take on a sickle shape, which obstructs normal blood flow inside the blood vessels and causes seizures. painful (sickle-shaped). crisis), inflammation, infection, thrombosis and multiorgan damage.

Thanks also to the research project in sports therapy, “we prevent the damage that the disease can cause to the muscles and bones. Serious damage – Corti emphasizes – that can hinder the normal psychomotor development and proper growth of these children.” Precision training, tailored to individual characteristics, is offered to all children and adolescents belonging to the center. The hematologist organizes the first meeting with the sports doctor and the motorcyclist. Next, a sports medical evaluation is performed for the planning of a series of directed exercises “focused on the prevention or treatment of pathological processes already underway such as osteonecrosis (death of bone tissue, due to a lack or insufficient blood supply, ed) to the extremities ”, the specialist emphasizes.

Until a few years ago, Corti recalls, we spoke only with motor rehabilitation, “with physiatrists and physiotherapists, after orthopedic interventions in osteonecrotic or osteomyeletic problems (bone infection, ed.) Related to the disease. Physiotherapy in the hospital and then the problem It had to be tackled, that is, how to get the child back into the area for a longer period of time, ensuring adequate recovery, growth and harmonious development. ” Since 2017, on the other hand, with the research project in sports therapy, we have been involved in the prevention of complications – the article reports – in the ability to take the patient, when necessary, to surgery in better conditions. to then follow him in the resumption of his ability to exercise and fully reintegrate into his own sporting and social life: sport is by definition inclusive.

Today, during the weeks of the bone marrow transplant, in his room – explains Corti – the little patient (child or adolescent), in a manner compatible with the clinical situation, walks, does muscle strengthening exercises, plays, practices sports such as football or golf. dance Everything with certainty and with proven results through scientific publications and international conferences ”.

The aim of sports therapy is to “make children move in the face of complex clinical situations – adds Luca Pollastri, sports doctor – This means looking for strategies to carry out an activity compatible with the contingent situation, know the pathology, have the possibility of a specialized pediatric support and of sharing the knowledge with the motorist to look for the compatible way and the support for the patient ”.

The strength of the center is that of a team of specialists and experts able to intervene harmoniously according to the specific needs of each child.

“The relationship between a pediatric hematologist, a sports doctor and a motorcyclist is absolutely important, because collaboration, in identifying the exercises that children can do, is essential to put into practice what is defined at the clinical level.” , remarks Wiliam Zardo, engine scientist of the center. For parents, “seeing that investments are also being made in sport in a growth phase – concludes Pollastri – gives important long-term hope. Global management is greatly appreciated.”

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